Английская Википедия:Act on Health Sector Database
The Act on Health Sector Database, also known as Act on Health Sector Database, No. 139/1998, the Health Sector Database Act and in media by other colloquial names, was a 1998 act of the Icelandic Parliament which allowed the Icelandic government to grant a license to a private company for the creation of a national biological database to store health information which could be used for research. The act was noted for boldly introducing policy related to biobanks and was the subject of controversy.Шаблон:Cn
deCODE genetics did most of the lobbying for the act and was the beneficiary of the license to create the database.Шаблон:Cn
Controversies
The passing of this act spurred international discussion about what policies were already in place and what differences in policy existed among biobanks.[1]
The establishment of a national database for all Icelandic citizens raised discussion about the nature of the informed consent process for the project.[2]
References
External links
- Шаблон:Official website, English translation
- World Health Organization summary
- Английская Википедия
- Biobanks
- Health law in Iceland
- Government databases
- Biological databases
- Database law
- Databases
- Science and technology in Iceland
- 1998 in Iceland
- 1998 in law
- Страницы, где используется шаблон "Навигационная таблица/Телепорт"
- Страницы с телепортом
- Википедия
- Статья из Википедии
- Статья из Английской Википедии
